{"id":123392,"date":"2022-03-28T16:30:00","date_gmt":"2022-03-28T16:30:00","guid":{"rendered":"https:\/\/news.xbox.com\/en-us\/?p=165020"},"modified":"2022-03-28T16:30:00","modified_gmt":"2022-03-28T16:30:00","slug":"beyond-xbox-a-player-like-me","status":"publish","type":"post","link":"https:\/\/sickgaming.net\/blog\/2022\/03\/28\/beyond-xbox-a-player-like-me\/","title":{"rendered":"Beyond Xbox: A Player Like Me"},"content":{"rendered":"
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As a child, Megan Shaw was always falling. She bruised easily, seemed to be accident-prone and fainted a lot. As a teenager, she found out she had Ehlers-Danlos syndrome<\/a>, a rare genetic condition that affects connective tissue. But at 23, she focuses on what she can do, not what she can\u2019t.<\/p>\n

A native of Scotland, she loves \u201cwild\u201d (in other words non-pool) swimming in nearby lakes (including Loch Ness) with friends and family. In the winter, she uses a wetsuit, but she doesn\u2019t need to wear braces or tape in the cold water, which soothes her joints. Mountain hikes are also part of her routine \u2013 though her backpack comes with a feeding tube. She\u2019s also six months out of medical school, doing a vascular surgery rotation as a junior doctor (the equivalent of a medical residency program in the U.S.). She intends to pursue a career as a pediatric physician.<\/p>\n

\u201cIn pediatrics it\u2019s very much about helping children live with what they have,\u201d she says. \u201cIt\u2019s about getting their symptoms controlled to a point where they can do the things they want to do.\u201d<\/p>\n

This is a philosophy that also drives her own approach to the disease she lives with.<\/p>\n